Nov 142011
New 5 Star review on Amazon for Old Before My Time

 5.0 out of 5 stars Amazing book, 13 Nov 2011 By Amanda – See all my reviews This review is from: Old Before My Time: Hayley Okines’ Life with Progeria (Paperback) This book was so much better than expected. I have followed Hayley since the first documentry. The book clearly tells her story and explains the medical issues behind progeria. I […]

Nov 102011
So ExcitedThe Wanted Retweeted Me

OMG! I was so excited today.  I Tweeted a message to my favourite band The Wanted saying ‘Wonder if @NathanTheWanted can see this Tweet. OMG what if he Retweets it, I would cry.’ And he did. I was so excited I was flapping around the living room like a chicken and mum thought I was […]

Nov 092011
My new puppy has arrived

Today I brought my new puppy home for the first time. Mum bought her for my birthday but I got her early. She’s an eight-week-old Chihuahua so she’s really small and really cute with big ears like a Gremlin. Our cat Tango keeps staring at her because she’s so tiny, she might think she’s a […]

Nov 042011
#HayleyOkines hits Number One in Amazon chart!

Fantastic news! Hayley’s book is already a chart topping success – it has hit number one in the “Living with illnesses” category on Amazon. Please share this great news and help us try and get it in the main charts for Hayley’s 14th birthday on Dec 3rd by downloading this banner and adding it to […]

Nov 022011
#HayleyOkines blog post about the #Progeria Reunion

From left to right – Hayley, Amber, Claudia from Portugal, Micael Correia, (translator & right hand man) and Rania from France. Photo by by Benno Neeleman. I just got back from the annual Progeria Reunion in Ashford, Kent. It was the chance for me to see lots of my old friends from other countries like Michiel […]