There is no cure for Progeria but we can treat some of the symptoms. Here are some of the remedies and medicines that we give to Hayley to make her quality of life as comfortable as possible.
Hydrotherapy. Every week we take Hayley to our local hospital for a 30 minute session in the Hydrotherapy pool. Hydrotherapy promotes relaxation, relieves pain, assists movement and enables exercise. It can also help prevent arthritis from getting worse. It is also great fun!
Nutrini. Hayley has a very small appetite and doesn’t really enjoy eating. Each night before she goes to bed she has a 200ml bottle of Nutrini. This provides all of the nutrients essential for well-being and health.
Pro-Cal. Pro-Cal is a new generation protein and calorie food enricher that can be added to a wide variety of food and drink to enrich the energy and protein content of the normal diet with the minimum effect on taste, volume and texture. We add a 15g scoop to Hayleys morning cup of tea and another to her bottle of Nutrini. Each Scoop provides her with 100kcal of energy and 2g of protein as well as vital minerals such as sodium, potassium and calcium.
Vitamin E. Vitamin E is a fat-soluble vitamin that protects Vitamin A and essential fatty acids from oxidation in the body cells and prevents breakdown of body tissues. Antioxidants such as Vitamin E act to protect the cells against the effects of free radicals, which are potentially damaging by-products of the body’s metabolism. Free radicals can cause cell damage that may contribute to the development of cardiovascular disease and cancer. Hayley has 4ml of Vitamin E every day.
Aspirin. Aspirin is now accepted as an important weapon in the prevention of heart disease. Recent clinical trials have shown that aspirin reduces the risk of strokes and heart attacks. A small dose of aspirin is enough to prevent dangerous blood clotting. This is of benefit to people with narrowed coronary arteries which is common place in children with Progeria. Hayley has half of a 75mg tablet every day.
Fluoride. All Progeria children have problems with thier teeth. Underdevelopment of the facial bones and the lower jaw leads to delayed eruption of the teeth, they can be small, irregularly formed or even missing and tooth decay is common. Fluoride can greatly help dental health by strengthening the tooth enamel, making it more resistant to tooth decay. Hayley has half of a 1.1mg tablet every day.