Feb 142013

Thanks to everyone who came to my Queen of  Hearts ball last week. I had an amazing time and we raised £4,000 for the next Progeria Reunion. Thank you to Jason Fry Photography for the lovely photos

Jan 012013

Happy New Year to everyone. Me and Mum are getting ready to fly to Boston at the weekend for results of my drugs trials. We’re hoping for some good news. Mum says it’s going to be -20 out there, so I need to wrap up warm.

Dec 242012

Hayley, aged four, and mum Kerry Christmas 2001

Merry Christmas everyone. Thanks for all your lovely messages and cards. I hope Father Christmas is kind to you all. I’m hoping to get Justin Beiber concert tickets in my stocking.


Oct 252012

Great news Girls Aloud are back on tour fopr their 10th anniversary. I hope I can get tickets for their Ten tour. Here’s a photo of me and Kimberley Walsh when I met them back stage in 2008. They were all so  lovely.

Aug 312012
Thanks to AU Mom in Tennessee, USA  for this great review of Old Before My Time: My Life with Progeria by Hayley and Kerry Okines
Excellent read. I enjoyed the fact that the book was written in her own words. This little girl has such a positive outlook about life and death. She is such an inspiration to everyone.’

For more reviews click here: